Steadman Family

1 - I just read Ben's article. WOW! Today, WE went to Chuck E. Cheese for no reason at all! I just said, "Hey, kids, let's go!" We hadn't been there in over six months! Glad to hear we shared something today! I hope Ben's un-birthday was tons of fun. Cecilia and Sophia won enough tickets to share a roll of Smarties. The best part was that they really liked sharing a roll of Smarties. We all came home happy. Glad to hear our raspberries made you grin.. :)Lots more where that came from! Abby (Comment this)

2 - Just needed to say we are thinking about you and we love you very much! (Comment this)

3 - Hey Ben,
I am glad to see that you are putting that blanket to good use! I hope Maddie is enjoying her's too. We love you all and are thinking about you and praying for your family.
Love and Prayers,
Sara and Carlo (Comment this)

4 - That was a great article, it bears repeating... You two are amazing. The whole family is incredible. Please remember there are so many of us that want to support you all however we can. (Comment this)

5 - Just read the article. Awesome.

I just spent the everning with my good friend Steve who has ALS (Lou Gehring's Disease). We talked alot about Ben and the whole family. The struggle with a terminal illness, and the sense of helplessness that can occur. Yet, he has just passed his 5 year anniversary since being diagnosed where there is a 80% mortality rate in the first three years. He says it is because of his family, friends and overwhelming support which keeps him moving and thriving.

I know Ben has the same support and I know this will help him with his fight. Please know that Ben is now part of the prayers of Steve's ALS networks of friends which is over 3000 strong. You all are in our prayers and thoughts always.

Todd (Comment this)

6 - Thanks for posting the link to the newspaper article. How nice of them to do the article. We look forward to seeing the TV piece.
Keep us posted on the secret garden. We would love to purchase a plant, tree, or whatever to help in the project.
Sending much love, Rich & Dot (Comment this)

7 - Just watched the video. Thanks for posting the website for it. Wish we could have been there to share in the fun and food. (Oh! how I remember taking our kids to Chuck E. Cheese and the experience of being there.)
As every day, we send our love, prayers and thoughts of each of you. Rich & Dot (Comment this)

8 - Great video and great article. Thanks for sharing. Love, Andrea (Comment this)

9 - Our thoughts are with all of you. Remember, we're just a few blocks away if you need anything! Much Love, The Flemings (Comment this)

10 - Great article for a great family!!! We love you and here is a cyber hug coming to each and everyone of you.

love,
Shan, Abe and Quinn (Comment this)

11 - Ohhhhh Little Anna Rose is sooooo beautiful. Wonderful article and TV clip. Can't believe what a little chatterbox Madie has become. The garden is a great idea if I can come help in anyway I would be honered.

Keep The Faith,

Jennifer (Comment this)

12 - Just another note to let you know that we are thinking of you and sending hugs & kisses and some raspberries. (I'm sure they aren't as good as the Fries' - as we grow older ours have become more slobbery.) XO, Rich & Dot
 (Comment this)

13 - My mom recently died as a result of failed conventional treatment for this aggressive form of brain cancer. Chemo and radiation don't seem to be especially effective. There is a possibility for younger patients that was discussed in a recent issue of New Scientist. This is a British science publication that I have had a subscription to or some time now and I find most enjoyable. Ten or weeks ago there was an article published about a therapy that holds great promise and is presently
undergoing the trial stage. This therapy has to do with a genetically modified virus that requires a growth factor found only in tumors of the Glial cells for it's reproductive success. The virus is inserted directly into the tumor where it reproduces madly, devouring the tumor. It then self destructs when it runs out of tumor cells that have the critical growth factor. My mom was too old but it sounds like this young boy might be just right for this trial. The article I mentioned described a young man in his twenty's that had recurrent tumors which were treated successfully and has been cancer free for several years now. If you are unable to locate the reference you would be welcome to
contact me and I will dig through my old pointers and find the reference to the article. Perhaps he would qualify for the trial.

PS
The issue of New Scientist in which the article was published is the November 19-25 2005. The name of the article is My Enemy's Enemy Written by Jo Whelan
If you wouls like me to send you the full text of the article I can scan it and send you an e-mail with it attached.

Kevin M. Clowers

home 303-682-9391
Cell 303-775-0841
e-mail kclowers@concentric.netn (Comment this)

14 - Thought I'd just let you know that we send our love and hope. Rich & Dot (Comment this)