Steadman Family

Ben’s tumor has grown by more than 50% in the last three weeks. The IV line that was installed today should help us have more control over his pain and vomiting. Dr. Foreman says that we need to think of Ben’s remaining time in days instead of weeks. I’ve been asking for some mercy to save him from slowly wasting away and it looks like my prayers are being answered.

We’re preparing Ben and Madie with the information that they need to face the events to come. I have no idea exactly what that means, but I know in my heart that Ben will be free from his cancer and pain. I have faith in an existence beyond our understanding and find comfort with Ben knowing more about it than I do. I am blessed to have had this time to learn from him.

We remain focused on keeping Ben comfortable. Thank you for respecting our privacy and using the comments here to send us your love.

I’ve been working on this post for a while now. I don’t feel like writing tonight, but I need to get this out.

Ben started having headaches Friday morning. He’s had a few headaches before, but we could tell that this was different. He was extremely tired and didn’t want to eat. He vomited up all the pain medications we tried. Our hospice nurse gave us some medicine to control the vomiting and pain. He’s spent the last three days mostly asleep. We’re heading into Children’s Hospital tomorrow morning for a quick CT scan to check for pressure in his ventricles and to get a direct IV line for medications.

Not sure what else to say at this point.