Steadman Family

We still haven’t gone in for Ben’s echocardiogram. There was a mix up with the scheduling since we were there so late the Friday of his MRI. They finally got it scheduled for this Friday morning to be followed by another day full of discussions with his doctors.

And now I’ll be postponing it all again.

Ben’s school is having several Christmas activities this Friday. He’s so happy to be back in school and we’d hate for him to miss anything for a scan that his doctors are fairly sure will show no results (back to the old brain surgeon ordering a heart scan joke).

The bottom line is that he’s feeling a million times better. He’s back in school. He’s jumping on beds. He’s being a kid again. Yes, we’re still concerned about this new lesion. Yes, we’ll get the scan to rule out a heart infection. We just want to make sure we don’t miss too much childhood along the way.

The doorbell rang at 7 AM this morning as I was groggily trying to decide if I was “working from home” or actually going into the office. I was surprised to find a police officer on our front porch and started running through my recent activities to make sure I wouldn’t be joining him for a ride to the station. I told Santa I was good this year, but a year is an awfully long time.

Ends up it was just Bo, one of the Sleepness Knights band members, dropping off a copy of the CD they recorded with “Ben’s Song.” I had it in the CD player and ripped onto the iPod within minutes.

I’m not sure where to begin in expressing my gratitude to the guys of the Sleepless Knights. First they write a song for Ben. Then they perform it in front of over 200 amazing people at Ben’s fundraiser. Then they professionally record it. Now they’re selling it at local businesses. It’s like dealing with Super Cops or something.

Bo put a great comment up a previous post stating that they all got into law enforcement to help people. Not many people are lucky enough to have a musical talent and to find a way to incorporate it into their life’s work of helping others. You guys are amazing and we’re honored to live in the community that you serve in so many ways.

We’re trying to get a list of where it will be sold and a plan for those of you out of town.