It’s only been a week
It’s only been a week since our last post, but it seems like so much longer. Ben has really begun to feel sooooo much better since going down to .5mg of Decadron a day. He’s regaining his strength a little bit more every day, and that “I’m a mischievious 6yr old boy” light has started shinning in his eyes again. He will be completely off the steriod by the end of the week, and hopefully, he will remain off until his post radiation MRI, due in 4 more weeks.
Ben and Madie got to spend Saturday night at my brother’s house with his 3 girls, and what a great time they all had. I’m told they stayed up late eating popcorn and watching Halloween shows in preperation for Halloween night, what fun! Halloween night was also spent with Rob’s girls, and the trick-or-treating was even better than last year.
Peaches continues to bring joy and laughter to our lives, she has truly become her own brand of medicine for us.
Finally, never underestimate the power and allure of Halloween candy booty. It had Ben dragging a dinning room chair across the room, climbing up onto the chair, and then onto the kitchen counter in order to reach the candy sitting on top of the fridge. He’s definatly back to being a 6yr old. It also helped me convince Ben to get back on the scooter after falling on the first try ( he hasn’t ridden a scooter since about a week before he was diagnosed, too much coordination and balance loss by then). I’m happy to say that he rode the scooter without a hitch on the 2nd attempt! Yeah!!
We’re still working on the “Make a Wish” thing. I’m hopeful that since he’s feeling better, he’ll get more interested in talking about it. We will possibly be going horseback riding on Friday, which will be very exciting for Madie no doubt. I’ll let you know if we actually manage to get them on the horse(s).
Love and peace
Melinda
