Continuing to move forward
Week three of radiation seems to be going a lot smoother. We are starting to get a feel for the best way to manage ourselves and the kids. Ive noticed that Ben seems to have more energy when he has a small mid-morning nap and when he eats small meals through out the day. The antibiotics have really helped his Bronchitis, and his BMs are becoming more regular. Both of which have contributed to his feeling better. However, the treatments are really zapping his energy, making it increasingly difficult to plan on any activity requiring a lot of walking. It has been suggested to us to get Ben a stroller for those times when hes just too tired. We like this idea, but are unsure as to how much we would actually use one. Therefore, we would like to ask everyone to keep their eyes out for a gently used stroller that can carry at least 50lbs (jogging strollers seem to carry more weight). Better yet would be anyone that might have a stroller we could borrow for a short time to help us get a feel for its usage.
Dean and I also managed to see a therapist on Monday. She was awesome and we both felt a lot of relief to finally have someone there to help guide us through this toughest of ordeals.
We were contacted by the Make-A-Wish Foundation today. They called to let us know that Ben has been given a wish to make of his very own. The only problem seems to be that when asked what wish hed like to make, Bens response is that he doesnt want a wish and refuses to make one (sigh). Maybe the wish grantors will have more success at getting an answer from him than we do. Then again, when Ben wants to be stubborn about something, rarely does he change his mind, especially with strangers.
Friday will be a potentially big day for us. We meet with Dr. Gore, the Clinical Coordinator for Childrens Hospital. She will fill us in on all the clinical trials currently running that might be a consideration for us after the radiation treatments are done. Well keep you posted on what any of those options might be.
Im so tired I can barely see straight, so thats it for now. Please continue to pray for Bens recovery and keep those posts coming! They are soooo comforting to read. It really helps us remember how lucky we are to have such a wonderful network of family and friends. We love you all!!!!!!
Peace,
Melinda
I also wanted to let you know how Madie is doing. She is such an amazing little girl! She continues to delight and engage us (including her brother). Please say a little prayer for her as well, since she has a tremendously difficult road ahead of her.
I mentioned to Peg the idea of Ben designing a park or play area for his "make-a-wish." I’m sure with everything asked of him these days, he probably is frustrated. We think of you all the time…Glad you were finally able to make some time for counseling. Keep up with Ben’s constipation…3 things make for a good day: Have a good sleep, eat what you enjoy, and poop.
(we never change) Lots of love, The Friess Family
Dear Steadman family, our daughter is in Ben’s class and we just wanted to let you know that your family has been added to our church prayer chain, they are asking if there is anything specific we can do for you. Our thoughts and prayers are with you through out the day, everyday.
Kajcienski Family
I’m a friend of Aimee’s and I met your son at Pete and Aimee’s 4th of July party. He came running up to Jill and me, without so much as a proper introduction, and shouted, "Anyone who wants to play tag with me, raise your hand." In his disbelief, when Jill and I did not immediately raise our hands, he threw his own arm in the air and said…."I mean….like THIS!" This probably isn’t nearly as funny in writing as it was at the time…but he was definitely the highlight of the party for me. He was so unique and charming….in a rambunctious boy sort of way.
I just wanted to let you know that I’m so sorry to hear about Ben’s illness and you are all in my thoughts a prayers. I hope it helps to know that people care.
My thoughts and prayers are with you all.
I talked to a friend of mine who has a double jog stroller and also a single regular stroller that was bought for a 6 year old daughter when she broke her leg. If you’d like either one or both of these, please let me know. I’d be happy to drop them by.
Our daughter, McKenzie, is in Ben’s kindergarten class. She asks about him regularly and prays for him in her bedtime prayers. We would love to do something for your family (fix a dinner, a household chore, or anything). Please know that each of you are in our thoughts and prayers.
The Miller Family
Hi Melinda,
You guys have been on my mind a lot. I’ve been reading every post you make, and praying for you and your whole family. Thanks for letting us know how Maddie is doing, I’ve thought about her a lot as well. I’m sending you ever once of love and good healing that I have. I look forward to maybe seeing you on Sunday.
Andrea
It was so good to see you this past weekend, and just do chores with you and Ben. You are constantly in my thoughts and prayers.
If you need anything, or need to get away for an hour, let me know.
Love you guys more than you know. Dearest Ben, Dean, Melinda and little Madie, you’re all constantly in our thoughts and prayers. Call us anytime, for anything at all.
Hi Dean, Melinda, Ben, and Mattie,
Lots of prayers are being sent your way.
Much love,
Paula
Many positive thoughts and prayers are coming Bens way. Keep going Steadman family you are loved by many.
Howard and Vicki
Expect more excellent articles from you. You are always my example in writing.