About Ben

Ben Steadman is your standard six year old boy. He loves dinosaurs, pirates and riding his bike and scooter around the neighborhood with his little sister and friends. He’s the type of boy that can go through an entire box of band-aids in a weekend and still be ready for more action.
He’s also a very gentle and loving kid. He has several blankets and stuffed animals that he cuddles with and can’t go to sleep without songs from both Mom and Dad. He gives hugs when seeing friends and insists on sharing with his sister.
Ben’s life started to change in August, 2005. We started noticing that he was having problems with his balance and eye-hand coordination. He began bumping into walls and using two hands on the railing when climbing stairs. His symptoms slowly became more pronounced and began to include slowed speech and slight drooling. After a few doctor appointments and phone conversations with a neurologist, we took Ben into Children’s Hospital of Denver. They performed several tests of his motor skills, a CAT scan and an MRI. Ben has diagnosed with a diffuse pontine glioma - an inoperable tumor in his brain stem.
He is a very strong little boy and is surrounded by his family and friends. Our family is using this blog to give updates on the progress of his treatments, to share stories and to express our love for such a beautiful kid. We welcome your comments, your emails and your prayers.